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Development of a Japanese version of the Short Bowel Syndrome-Quality of Life (SBS-QoL) scale
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Yuko Tazuke
, Mayu Suzuki , Sae Kikuchi , Kaori Ishiguro , Hiroomi Okuyama
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Ann Clin Nutr Metab 2025;17(2):132-138. Published online August 1, 2025
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DOI: https://doi.org/10.15747/ACNM.25.0016
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Graphical Abstract
Abstract
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- Purpose
The Short Bowel Syndrome‐Quality of Life (SBS‐QoL) scale is a reliable and sensitive instrument developed to measure and evaluate the quality of life (QoL) in adult patients with short bowel syndrome (SBS). In Japan, increasing attention has been given to the assessment of QoL in patients with SBS; however, no Japanese‐language SBS‐specific scale is currently available. This study aimed to develop a Japanese version of the SBS‐QoL based on the original English version.
Methods A provisional Japanese version was created in accordance with the guidelines of the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) Task Force, utilizing a process of forward translation, adjustment, and back translation.
Results Cognitive debriefing using the provisional Japanese version was conducted with six Japanese patients with SBS. Based on these results, the Japanese wording was evaluated and revised, leading to the creation of the final Japanese version.
Conclusion The Japanese SBS‐QoL, which has been confirmed to possess linguistic equivalence with the original English version, is expected to support the treatment of Japanese SBS patients, ultimately aiming to improve their QoL.
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Management of pediatric short bowel syndrome complicated by chronic kidney disease and secondary hyperparathyroidism: a case report from Japan
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Keita Takayama
, Yuko Tazuke , Takeshi Kimura , Takeshi Ishimi , Koichi Deguchi , Kengo Nakahata , Motonari Nomura , Miho Watanabe , Takehisa Ueno , Hiroomi Okuyama
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Published online September 11, 2026
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DOI: https://doi.org/10.15747/ACNM.26.0068
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Abstract
- A boy born at 24 weeks and 3 days of gestation, with a birth weight of 662 g, developed midgut volvulus secondary to intestinal malrotation at 3 months of age (reported corrected gestational age, 37 weeks). Extensive small-bowel resection and stoma creation left 20 cm of residual small intestine. He was transferred to our hospital for long-term nutritional management because of persistent liver dysfunction, jaundice, renal dysfunction, poor weight gain, and multiple fractures involving all four extremities. At admission, at 1 year and 3 months of age (reported corrected age, 7 months), he weighed 3.5 kg, and radiographs confirmed multiple extremity fractures. Laboratory testing showed malnutrition, hypocalcemia, renal dysfunction, and a markedly elevated serum parathyroid hormone concentration of 1,174.2 pg/mL. Secondary hyperparathyroidism was considered multifactorial, reflecting inadequate calcium availability due to short bowel syndrome together with coexisting chronic kidney disease. Calcium and phosphate supplementation were adjusted, and parenteral nutritional support was intensified. After 3 months, his weight had increased to 5.71 kg, and electrolyte abnormalities had improved. He was then discharged with home-based nutritional management.
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